ABOUT US

 

Brief background

The Haemophilia Foundation of Nigeria (HFN) is a Non-Governmental Organisation serving the entire bleeding disorders community in the country to improve the care and management of people with haemophilia and other inherited bleeding disorders.

HFN was founded in 2005 by a mother who wanted to see a change in the medical care being given to people living with haemophilia in Nigeria.

HFN was registered with The Corporate Affairs Commission on 26th October 2005 and currently has as over 400 members. 

HFN is a volunteer organisation and managed by volunteers from all backgrounds that include patients, parents, and medical personnel. HFN’s National Executive Committee, which meets regularly, comprises of 11 individual members who hold office for a two-year period and can be re-elected for a second term. HFN has five full-time administration paid staff. HFN also has a Medi

HFN became a full member of the World Federation of Hemophilia (WFH) in 2006 in Vancouver, Canada. HFN is part of a global network of volunteers caring for people with inherited bleeding disorders. HFN benefitted from the WFH twinning programme (2013 to 2016) with the National Hemophilia Foundation, USA to share experiences and develop the organisation.

Haemophilia is a highly treatable condition. Therefore no child born with a bleeding disorder should have to live with pain, disability, or the prospect of early death in Nigeria.

“Treatment for all” means all people with bleeding disorders; including inhibitor patients, rare factor deficiencies and females should have access to safe and effective treatment. Meanwhile, working towards safe products, proper diagnosis, Haemophilia management, and care by trained specialists should be available.


 

Thematic Programme/Areas of Focus

Free Diagnosis and Treatment Products
Professional Awareness Seminars
Youth Empowerment and Leadership Development Programs
Patient Education (Summer Camps & Conferences, Chapter events)
Medical Training
Rural and Urban Outreach
Women Empowerment
Free Legal Aid and Education
National Awareness Week and World Haemophilia Day


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Participants group activity at HFN event

VISION

To see that persons with bleeding disorders live a normal life.

MISSION STATEMENT

HFN mission is to SUPPORT, EDUCATE and ADVOCATE for persons with bleeding disorders to have access to RIGHT and PROMPT treatment. In so doing, HFN aims to improve the level of expertise and treatment facilities in Nigeria to meet up with World Federation of Haemophilia standards.

Overall Objective

The overall objective of HFN to improve the standard of life for persons with bleeding disorders in Nigeria through:

Embarking on Urban and Rural Outreach programs in order to create awareness amongst the public and identify new patients.

Advocating for Federal and State Ministries of Health to have a Desk Officer for bleeding disorders and be enlisted in the non-communicable department budget.

Advocating to have trained Health Care Professionals working in designated hospitals that serve as treatment centres and also for more facilities in these centres.

Raising funds to support patients and their families suffering from Haemophilia and Inherited Rare Bleeding Disorders through skill acquisition trainings.

Networking with other associations on the local, regional and international level to improve the organisation and understanding of Haemophilia and Inherited Rare Bleeding Disorders.

Collaborating with Ministry of Health (State and Federal) to ensure the availability of FREE treatment products in the country.

Representing the bleeding disorders community without favour based on good governance principles.

Core Values

I – INTEGRITY: To act according to the values we wish to promote

C – COMMUNICATION: Encourage directness, candor and diversity so that people and ideas thrive

A – ACCOUNTABILITY: Taking personal ownership and pride in our actions and always putting forth our best efforts

R – RESPECT: Being honest and forthright in everything we do; while understanding and valuing the contributions and priorities of others

E – EXCELLENCE: We strive to deliver the highest quality and value possible through simple, easy and relevant solutions.

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